Unless you are a medical professional, chances are you have not heard of The International Classifications of Diseases, 10th Revision also known as ICD-10. This is a worldwide system used to classify all diseases, injuries, and causes of death. They are translated into a code that is a mixture of letters and numbers. In the United States, correct ICD-10 coding is an integral part in getting bills paid by insurance companies.

While the system is comprehensive, it is not complete meaning not all diseases have specific codes. Myhre Syndrome is one of those diseases. As it can be difficult for doctors to find and there is a similar disease in name that is incorrect, Myhre Syndrome Foundation wants to ensure you have accurate information.

The ICD-10 code for Myhre Syndrome is: Q87.89 ‘Other specified congenital malformation syndromes, not elsewhere classified.’

If you are looking for the actual code in your chart, you may not be able to see it. However, most electronic health records have a problem list or diagnosis list. This is a good place to start to see if you have the correct diagnosis. You can always discuss it with your physician as well.