#moveformyhre
Your fundraising is vital, as it enables us to support the Myhre community and fund much-needed research.
Each September, we honour the Myhre community by meeting up, fundraising and raising awareness of this very rare and complex syndrome.
Every penny you, or your own community, raise will directly benefit everyone with Myhre. Our mission is simple - to support the Myhre community, develop treatments and find a cure.
The Stahl family
“Each year, we hold a bake sale and lemonade stand for Move for Myhre, as our son Clark has Myhre syndrome.
Clark's older sister helps bake, package, and manage the sales. The local response is always overwhelming. People drive over just to meet us and donate.
Our little bake sale/lemonade stand has raised over $3000 in the last two years. Our advice is just to go for it; people want to help and support.”
Fundraising inspiration
There are no limits or boundaries on what you can do to help raise awareness and fundraise for Myhre.
Turn one of your favourite hobbies or social occasions into a fundraiser - from a card night, to a pamper evening, quiz or barbecue.
Don’t forget to tag us #moveformyhre
The Becknell family
“We ran a half-marathon but I really think that our social media shares about Myhre and Alex were what helped the most.
Just letting people know what exactly can happen with Myhre and having Alex talk in videos made the most impact. The ones with him talking were the most successful for our fundraising.
Sharing our story not only raised awareness but also put that personal experience out there, and we raised $6732!”
Move for Myhre - Bake Off
There is always time for cake, and what better way to bring a community together than over a sweet treat that’s baked with love? So why not try a bake sale?
This year, we have some yummy recipe ideas that are not only delicious but also use natural and low-sugar alternatives.
Thank you to Becky Allan, who provided the recipes for our 2022 campaign and are still favorites today! Take a pic and tag us with your finished bakes #moveformyhre
A Cake for All Occasions
Shortbread
Low Sugar Flapjacks
Healthier Option Oatmeal & Raisin Cookies