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Myhre Syndrome Foundation

25 Creekwood Circle
Richardson, TX, 75080
(202) 656-9473

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Myhre Syndrome Foundation

  • What is Myhre?
  • News
  • Families
    • Family Resources
    • Emergency Information
    • Research Roadmap
    • Patient Registry
    • Handbook
    • Events
    • Shop
    • Myhre Family Map
  • Clinicians
    • Research Roadmap
    • Directory
    • Medical Advisory Board
  • Researchers
    • Preclinical Platform
    • Material & Assays
    • Research Roadmap
    • Funding
    • Patient Registry Data
    • Scientific Advisory Board
  • About MSF
    • The MSF Board & Advisors
    • Contact Us
  • Ways to Help
    • End of Year 2024
    • Fundraise
    • Legacy
    • Move for Myhre
    • Volunteering
  • DONATE NOW

Watch our community video!

February 28, 2021 Kate Wears

To celebrate Rare Disease Day we put together a video of some of the amazing Myhre community.

← Sophie & Rafael's StoryOur journey with Myhre Syndrome →

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