Directory of Myhre Doctors & Clinicians

The MSF Directory gives patients, caregivers and family members information on professionals who have treated a Myhre patient. The directory is evolving and being updated as soon as we have verified details of a doctor who has been involved in the care of a Myhre patient.

Professionals on this list have either been recommended by the Professional Advisory Board, are members of a Myhre Clinic, or have been recommended by the Myhre Syndrome community.

MSF does not interview the professionals listed here but they are all contacted and have granted permission to be included on this list.

Please research each doctor or talk with your primary care physician for further guidance.

Use this form when you next see your doctor so they can join the list below and help the wider community find the support they need.

Myhre Syndrome Clinics
A clinic provides state-of-the-art care by an expert multidisciplinary team of providers looking at the patient as a whole person. The team provides a comprehensive evaluation specific to the needs of people with Myhre Syndrome and co-ordinates care with the patient’s primary care provider to identify specialty needs and improve outcomes.

Clinics are indicated by a * in the list below.