Cardiovascular Connective Tissue Disorders Program
We’re thrilled to announce the opening of a dedicated Myhre Syndrome Clinic at Stanford University’s Cardiovascular Connective Tissue Clinic in California, USA. This clinic brings together experts in genetics, cardiology, and other specialties to provide personalized care for patients and families while advancing research into Myhre syndrome. You can find out more here if you’re interested in visiting the Stanford Clinic.

”At our Stanford Medicine Children’s Health Cardiovascular Connective Tissue Disorders Program, we believe in providing comprehensive and coordinated care for individuals with Myhre syndrome. Our multidisciplinary team approach ensures that comprehensive care is provided through the collaboration of various specialists. These include a geneticist and a genetic counselor, cardiologists, a pulmonologist, ENTs, psychologists, a psychiatrist, a social worker, and a nurse coordinator. This integrated approach allows us to offer personalized care tailored to each patient’s unique needs, improving their quality of life.”

You can view the care team here. Call here to make an appointment (844) 451 9929.