Professional Advisory Board Updates

The Board of Directors is supported by a Professional Advisory Board (PAB) made up of international doctors, healthcare professionals and scientists involved in research and treatment of individuals living with Myhre syndrome who give their time voluntarily to offer clinical and research-related advice to the foundation. The members of the PAB serve as a resource on scientific and medical issues including opinions on methods of managing and treating the syndrome and review of the foundation's literature to ensure that information is medically accurate as well as on issues related to advancing research, promoting awareness and supporting MSF programs.

The PAB recognizes that accurate information is key in helping you manage and maintain your or your loved one’s health.

Check here for expert health information and tips.