Summer Seminars - Speaker List

Throughout the month of July, we’ll be sharing new and updated presentations from Myhre experts.

Registration for the event opens on 9 May 2022 | Summer Seminars launch 9 July 2022

Eleanor Scimone, BS, CRA
A presentation on imaging of the brain and spine.

Michael Cohen, MD
ENT: Hearing Loss in children.

T. Bernard Kinane, MD
Lung and sleep related issues with Myhre syndrome.

Weizhen Tan, MD
Nephrology & Hypertension, management of all disorders of the kidneys and urinary tract that affect infants.

Mark Lindsay, MD is a cardiologist specializing in genetic conditions related to cardiovascular systems.

Robyn Thom, MD
Dr Thom specializes in psychiatric conditions in individuals with autism spectrum disorder and other developmental disabilities.

Lynne Levitsky, MD
Endocrine issues in Myhre syndrome.

Patti Schultz - Patient perspective on hearing loss & hearing aids.

Gena Heidary, MD, PhD
Neuro-ophthalmology - vision and examination of the eye

Brigette Jason, PT, DPT - discussing how physical activity can help with Myhre and tips for exercises to try.

Evelyn Lilly MD
Dr Lilly specializes in skin conditions, including nails and hair.

Angela E. Lin, MD
MGH Myhre Syndrome Clinic with updated findings.

Kate Wears - President, Myhre Syndrome Foundation, an update on all MSF news and our three year plan.

Sarah Kadzielski, MD is a pediatric gastroenterologist and will discuss issues related to GI and constipation.

Cole Hague, PhD - will talk about the pediatric clinical neuropsychologist role and the role of neuropsychologic testing.