Kate Wears

Executive Director

Kate reports to the board of directors, who serve as a unique and meaningful resource and provide a caring and supportive community for Myhre syndrome families. The Board members, who all volunteer, oversee the organization's mission, goals, and activities, including strategic planning, fundraising administration, and financial management.

Kate and her family moved to California in 2019 from the UK when a new job opportunity presented itself, and the adventure began! Her two sons have embraced the sunshine state and love the outdoor lifestyle. Her youngest son, Josh, didn’t present any significant symptoms, yet a few concerns put the family on a path to a diagnosis, and just over a year later, Myhre Syndrome was confirmed when he was two years old.

Kate graduated with a BA Hons Degree in Journalism in 2004, and a marketing career has taken Kate worldwide, representing many well-known brands.

Becoming a full-time mum in 2016 gave Kate a new focus. Following Josh’s diagnosis, she wanted to take action and support the Myhre Syndrome community in any way she could.

A passion for writing has led Kate to complete a novel's first draft, with a dream to one day be published.

kwears@myhresyndrome.org